Healthcare practitioner education

This page is designed for healthcare practitioners. It aims to replicate some of the fundamental elements within the course, such as hearing directly from other patients and centres about Shared Care. There is a toolbox of resources that will help you to learn, reflect, and then experiment with new ideas to support your own patients.

Course evaluations consistently quote that listening to patients and learning from other centres are the most influential factors to changing practice.

"Really easy to follow. New learning and found the videos really powerful listening to their stories. Good for new and old staff!"

Staff from Oxford University Hospitals NHS Foundation Trust

Use this page to support your induction programmes, for existing staff, or for your own self-directed learning and reflection.

A checklist is included to help you record your learning hours and reflective practice.

Contents

  1. How it feels to be a patient on haemodialysis - videos
  2. Health care practitioner experiences of Shared Care
  3. What is shared care? A patient perspective
  4. Other learning resources for healthcare practitioners
  5. Competency record for healthcare practitioners
  6. Checklist: documentation of learning

How it feels to be a patient on haemodialysis - videos

Whilst nothing is better than a live discussion, this series of short videos aims to provide what are often hidden insights shared by a group of patients.

These will help you, as healthcare professionals, to understand what is important from a range of patient perspectives. Use the adjoining practice work to reflect and guide you.

1. How did I feel starting dialysis?

We all have a different story for you to learn from.

Ask one or two of your patients:

  • how they felt when they started dialysis?
  • what were they most anxious about?
  • what would have helped them to feel less anxious?

Learn about the counselling and support services offered by Kidney Care UK to support your patients

2: How has shared haemodialysis impacted on my life?

Shared care can help us to take control and feel engaged in our own care

Watch David’s story to understand more.

Ask one or two of your patients:

  • how they cope with life on dialysis?
  • what has changed for them?
  • what impact has it had on their family, social and work life?

3: How can you help me to engage with shared care?

Ask us, listen to us, know how to help us.

Read more of the stories on patients experience with shared care on the website.

Use open style or collaborative questions with a couple of patients one of which you think is positive and another who you believe to be negative. Reflect on your new learning - what do they need?

4: Why don't I always follow medical advice

There's always a reason behind what we do.

Watch the Motivational interviewing video to understand how to have conversations to explore how to support people.

Practice using reflection as in active listening technique and evaluate its impact on a conversation.

5: Why do I want to help my fellow patients?

Peer support is vital to our care – we can really benefit from supporting each other.

Find out what your unit offers for peer support.

Look at the information on peer support on the Kidney Care UK website

Acknowledgements: The following videos are the work of Tim Hunt - who recorded, edited and produced the video series - and Tania Barnes who conducted the original interviews. Thank you to the patients who took part and shared their time, thoughts and emotions to create this valuable education resource.

About us

Learn more about the people behind the patients who took part in the making of the video interviews series.

Photo of Anne Marie

Alciena
(expand to learn more)

I am a mother of a beautiful daughter.

I worked as a Clinical facilitator in a Practice Development Unit with a strong passion to teach and share my knowledge. I am now "on the other side of the fence" but with that very same passion.

I love to cook, spend time in nature and practice mindfulness.

Photo of Anne Marie

Anne Marie
(expand to learn more)

I am a 46 year old woman who loves life. My partner and family mean everything to me.

I enjoy swimming bowling and going the cinema. I also go to bingo once a week with my mam. It’s our quality time together.

Shared care has made such a difference to me. It gave me back control over my life. Speaking with other patients on the courses has made me feel like I am not alone in all the doubts and fear I felt when starting dialysis. So being able to reassure other dialysis patients and answer their questions gives me great satisfaction and a sense of purpose.

Photo of Daniel

Daniel
(expand to learn more)

I am an active outgoing person with a positive attitude towards life. I am into high adrenaline activities and have done things like parachuting and abseiling for charity, I even abseiled down one of the renaissance hotels. I also have Multiple Sclerosis and unfortunately can no longer carry out the high adrenaline things but luckily my other hobby is being an avid gamer. Since a child I have always had one console or another and can just lose myself in my games.

I am married and my wife is also my carer to help me through the tough days. We want to start a family through IVF. Despite all the obstacles put before us we try to maintain a positive outlook on lives and work together to help each other and others around us where we can.

During my kidney journey I learnt how to take control of my renal health and how to self dialyse. After my transplant I wanted to put my experience to good use empowering other patients to get involved in their own care. I take pride in helping others and watching them grow and am a strong believer in giving everyone the opportunity to take part in their own healthcare.

Photo of Kasonde

Kasonde
(expand to learn more)

A lover of words, music and food, outside work, I am an etymology enthusiast, a real foodie who enjoys cooking and eating foods from around the world and a good boogie.

I am a professional administrator with substantial experience in the public and private service sector. Currently I enjoy the versatility of my role as Parish Administrator of my Catholic Parish Church in London.

Because I value my freedom and independence, I dialysis at home and recently moved to night time dialysis.

Photo of Shaun

Shaun
(expand to learn more)

I am a passionate, social individual, dedicated and driven to make positive change. I am married and have two amazing children and the most handsome dog ever. I work as a patient advocate and enjoy being able to provide the advice and support that I would have benefited from myself had it been available for me when I was younger and less wise. I love football, playing it and watching it.

I like watching films and I am a Marvel nerd. I have always enjoyed drawing and now regularly use that love through creative media design and social media promotion. I have grown up with CKD going from one treatment mode to another. One of the ways I am able to deal with my condition is by supporting others and recognising when they need a listening ear from someone who knows how it feels.

Because I value my freedom and independence, I dialysis at home and recently moved to night time dialysis.

Photo of Steve

Steve
(expand to learn more)

I am a long-term CKD patient over 22 years. I have done Peritoneal dialysis, Shared Care and home haemodialysis.

I am a passionate advocate for patients getting involved in their care either through shared care or home dialysis.

I am also a husband, dad and grandad of 7, 3 of my own and 4 step-grandchildren. My favourite hour of any week is the one I spend in a swimming pool where I'm teaching the grandkids to swim. I'm active in my local community and a highlight of my year is running our village scarecrow festival. I don’t work now but I have worked in retail, then as a lawyer before kidney failure put paid to that career. I then spent a few years teaching English as a second language but none of those jobs compare with being a grandad which is my favourite thing ever and I would never have never experienced any of it without dialysis.

Feedback

Now that you have watched the videos, please complete the survey with 5 questions to provide feedback to the patients and designers involved in the videos. You may wish to save your answers as part of your own reflection

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Health care practitioner experiences of Shared Care

The following resources will help you to understand what Shared Care is and how others have implemented this patient centred approach in their local dialysis centres. You will see that although there are similarities between each one, they have found their own unique methods of supporting patients.

What I tell healthcare practitioners about shared care

An introduction from Tania Barnes, Shared Care lead

Danni's story

Learn how Danni felt before the Shared Care programme and how she and her patients benefited from the change.

Anitta's story

Learn how Anitta created a Shared Care environment in her satellite dialysis unit

Donna's story

Watch and listen to Donna describing her role and how it benefited the patients in her dialysis unit

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What is shared care? A patient perspective

The following patients were asked to explain to healthcare professionals what Shared Care means to them and why they have chosen to be more active in their treatment.

You will notice that there are many factors involved in their decisions.

Tara

Tara

YouTube, 3 minutes 24 seconds

Shaun

Shaun

YouTube, 4 minutes 16 seconds

Harjinder

Harjinder

YouTube, 1 minute 34 seconds

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Other learning resources for healthcare practitioners

E-learning for Health literacy

The NICE Shared decision making guidelines include references to health literacy and teach back technique. This is really useful learning if you are implementing shared haemodialysis care. The following elearning is available to help you understand how to better support your patients.

Health literacy is about people having enough knowledge, understanding, skills and confidence to use health information, to be active partners in their care, and to navigate health and social care systems.

The elearning resource takes about 30 minutes to complete. At the end of the module learners will know why health literacy is important and how to use some simple techniques including TeachBack, chunk and check, using pictures and simple language to improve communication and check understanding with others.

After each section learners complete an action plan detailing how they plan to use the techniques in practice. This plan can be used as evidence of learning in appraisals or professional portfolios.

Access the health literacy e-learning programme

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Competency record for healthcare practitioners

You will find a competency document designed to be used in the training of healthcare practitioners providing evidence of formal training. This can be used in conjunction with the checklist for learning on this page.

Both documents provide a starting point for your own local training. They are not copyrighted and can be adapted to suit your needs and your own branding.

Staff training competency record (Word document, 28KB)

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Checklist: documentation of learning

Checklist for learning (Word document, 44KB)

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