Data Use and Privacy Policy

Who we are

The Sharing Haemodialysis Care website is intended to bring together information and guidance about the varied areas of shared haemodialysis care. The vision of Shared Care is for people who receive treatment at dialysis centres to have the opportunity and support to participate in their treatment and thereby improve their experience and their outcomes.

This policy sets out how we use data stored on our site.

What information we hold

We record a small amount of information about how our site is used to help us develop and improve it, and therefore provide the best possible service to our visitors. This data is not personal and cannot be traced back to any individual visitor.

Most of the content on this site is publicly and freely available, and therefore we do not collect any personally identifiable information from our visitors when they access this content.

In some areas of the site you will have the option to request further information via a contact form. These forms will require a small amount of personally identifiable information, such as:

This information is used purely to help us provide you with further information and news about shared dialyis care. Information you provide will be stored within a UK or EU-based secure NHS environment, and will never be shared with a third party without having obtained explicit consent from you. If you wish us to delete any record of yourself from our system after having provided it, please contact our data policy contact as identified at the bottom of this page.


What are cookies?

Cookies are files saved on your phone, tablet or computer when you visit a website.

They store information about how you use the website, such as the pages you visit.

Cookies are not viruses or computer programs. They are very small so do not take up much space.

How we use cookies

We only use cookies to make our website work.

We do not currently use cookies to measure how you use our website, such as which links you click on (analytics cookies). This will change in future as this information can be beneficial in helping us improve the site. Once these analytical cookies begin being used, we will ask your permission when you visit the site before activating them.

We do not use any other cookies, for example, cookies that remember your settings or cookies that help with health campaigns.

‚ÄčOther uses of personal information

Use of photography and media

As part of this project, we have built up a library of stock photos taken at various participating NHS dialysis units across the UK. We have also produced several videos relating to Shared Care. All persons involved in these photos and video recordings provided their consent for their image to be taken and for these to be used in media supporting the Shared Care project.

We may also take photos at relevant events for use in new articles, or request photos from third party sources where appropriate. We will always ensure that explicit, informed consent has been given for this use where identifiable persons are included. At the time your photo was taken you should have been informed fully about how the photo would be used and where it would be shared, and you should have been given the opportunity to give your consent for the photo to be taken. If you do not believe you were given the opportunity to consent to your photo being used, please contact us via the e-mail below and we will endeavour to investigate and resolve the issue as soon as possible.

News articles and stories

As part of the Shared Care project, we have been serving as a platform for patients and staff to share their experiences in participating in Shared Care. This takes the form of written stories and news articles which are published on this site, often accompanied by photos. All persons referenced in these articles gave their consent for the article to be published on the site.

If a photo or video on this site contains your image and you either wish to withdraw your consent for its use, or believe you did not provide informed consent for its use, please contact Sonia Lee via the details below. Your personal information/image will be removed as quickly as possible, and we will do our utmost to ensure that your right to privacy has been respected.

Data Policy Contact

Tania Barnes [email protected]

Page last reviewed: 31 July 2022
Next review due: 15 August 2022